Access the authentic patient voice

Bolster your real-world research programs with unrivalled insights into the rare disease experience

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Real-world data capture

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Qualitative research

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Quantitative surveys

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“It’s not always easy to take my meds when I need to. That’s because sometimes they need to be prepared and I need to run out the door or migraines keep me in bed.”

Raremark Member

Insights fuelled by the real experts in rare disease

Rare disease patients and caregivers often know more about their condition than anyone else.

That’s why we empower everyone affected by rare conditions to share their experiences and help build a deeper understanding of life with a rare disease. These lived experiences could be the vital missing pieces in your research projects.

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Find and engage hard-to-reach patients

Finding niche geographically dispersed populations to take part in your surveys and longitudinal studies can be difficult.

We have developed unique techniques to gather insights from hard-to-reach patients, through our in-depth understanding of online patient behavior.

Armed with data, knowledge, and powered by empathy, we create holistic digital experiences that reach patients previously thought unreachable.

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Longitudinal, real-world data to support US FDA submission

Discover how we supported a US FDA submission by collecting real-world experiences to track how pouchitis affects quality of life.

Read the Case Study

Get in touch

Interested in hearing more? Feel free to reach out to us, and we’ll make sure to get back to you as soon as possible.